Pediatric Resources for the Patient Centered Medical Home

The Joint Principles for the patient centered medical home were endorsed in Feb. 2007 by four major primary care organizations.  The American Academy of Pediatrics provides a preamble to the Joint Principles that highlight certain critical pediatric medical home principles.  The preamble is found here

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The American Academy of Pediatrics proposed a definition of the medical home in a 1992 policy statement. Efforts to establish medical homes for all children have encountered many challenges, including the existence of multiple interpretations of the "medical home" concept and the lack of adequate reimbursement for services provided by physicians caring for children in a medical home. A new policy statement, released in 2002, contains an expanded and more comprehensive interpretation of the concept and an operational definition of the medical home.

http://aappolicy.aappublications.org/cgi/content/full/pediatrics;110/1/184

For Practitioners:  Building Your Medical Home Toolkit

Brought to you by the MCHB-AAP/National Center for Medical Home Implementation, the Building Your Medical Home Toolkit supports the primary care practitioner's development and improvement of a pediatric Medical Home. It also prepares a pediatric office to apply for and potentially meet the National Committee for Quality Assurance (NCQA) Physician Practice Connections Patient Centered Medical Home (PPC-PCMHTM) Recognition program requirements. Access the tools at www.pediatricmedhome.org.

In recognition of the critical partnership between a health care provider and the families they care for, the Building Your Medical Home Toolkit offers resources on how providers can facilitate clear communication between the medical home and their patients and families. In particular, the Care Partnership Support section includes a template brochure for practices to personalize and distribute to their patients and families. The brochure can help families understand their role in medical home and how to communicate with the providers.


Family Voices: Pediatric and Family Centered Advocacy

Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.

Family Voices Resources:


Guidebook on How Young Adults Can Advocate for Their Own Health

The guidebook, "Being a Healthy Adult: How to Advocate for Your Health and Health Care," published by the Boggs Center University Center of Excellence on Developmental Disabilities, Robert Wood Johnson Medical School, is available in English or Spanish. To download a PDF or audio version of the guide, visit here.  


"My Family Health Portrait" - Web Tool from the US Surgeon General

Americans know that family history is important to health. A recent survey found that 96% of Americans believe that knowing their family history is important. Yet, the same survey found that only one-third of Americans have ever tried to gather and write down their family's health history.

Because family health history is such a powerful screening tool, the Surgeon General has created a new computerized tool to help make it fun and easy for anyone to create a sophisticated portrait of their family's health.

The revised version of the "My Family Health Portrait" tool is a Web-enabled program that runs on any computer that is connected to the Web and running an up-to-date version of any major Internet browser. The new version of the tool offers numerous advantages over previous versions, which had to be downloaded to the user's computer.

The Web-based tool helps users organize family history information and then print it out for presentation to their family doctor. In addition, the tool helps users save their family history information to their own computer and even share family history information with other family members. Access the My Family Health Portrait Web tool {link: https://familyhistory.hhs.gov/}

Measuring Medical Homes: Tools to Evaluate the Pediatric Patient- and Family-Centered Medical Home PDF
Developed on behalf of the National Center for Medical Home Implementation by Rebecca A. Malouin, PhD, MPH. The purpose of this monograph is to present various tools available and in use to identify, recognize, and evaluate a practice as a pediatric medical home. Because no one tool is recognized as the de facto tool to assess pediatric practices, a review of the relative merits of existing tools will help inform purchasers, payers, providers, and patients in evaluating pediatric practices. The tools reviewed in this monograph include:

A limited number of hard copies of the monograph are available at no charge. If you are interesting in receiving a copy, please contact Corrie Pierce at cpierce@aap.org or 847/434-7605.

More information: http://www.medicalhomeinfo.org/how/performance_management.aspx

For Consumers: Child Health Day Fact Sheets

The National Center for Medical Home Implementation Web site provides downloadable materials for providers, parents, and children. In addition, a variety of resources for families and providers are described: care notebooks, brochures, toolkits, informational flyers, etc.--with direct links.  Find them at http://www.medicalhomeinfo.org/quick_links/medical_home_video.aspx 

Specific tools include:

State-Specific Information
State Pages are maintained by the National Center for Medical Home Implementation and are designed to keep you informed about key contacts, partners, initiatives, and activities in each state that will help improve access to medical homes for all children and youth. Visit http://www.medicalhomeinfo.org/state_pages/ to access your state today.